tag:blogger.com,1999:blog-12404113.post112888409776567177..comments2023-07-20T05:08:12.791-04:00Comments on Spina Bifida Moms: Spina Bifida Pregnancy - Big Deal or Big Void?Amy Linderhttp://www.blogger.com/profile/15496005772917020822noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-12404113.post-3655370628878237542016-08-29T20:26:01.179-04:002016-08-29T20:26:01.179-04:00So 11 years after writing this blog..I find nothin...So 11 years after writing this blog..I find nothing helpful on the subject.. except for your posts ☺<br />If anyone knows of any good books on the subject let me know! 😊Ana Vhttps://www.blogger.com/profile/06058674173502375102noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-13786137064251052852016-08-29T20:24:18.502-04:002016-08-29T20:24:18.502-04:00hi.. how did yourr pregnancy go? did you plan to h...hi.. how did yourr pregnancy go? did you plan to have more kids after that? Ana Vhttps://www.blogger.com/profile/06058674173502375102noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-41868862224316984662016-01-09T06:13:09.533-05:002016-01-09T06:13:09.533-05:00I also have SB and i am the proud mother of a 2yr ...I also have SB and i am the proud mother of a 2yr old boy who also has SB, pregnancy was hell for me as i lost all independance, my partner at the time (im now a single parent) had to do everything for me, which i hated but i had a normal delivery with just gas n air, my son is my miracle as i was told i could never have kids xAnonymoushttps://www.blogger.com/profile/17255919830789648488noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-64321840508399880202016-01-09T06:12:03.104-05:002016-01-09T06:12:03.104-05:00I also have SB and i am the proud mother of a 2yr ...I also have SB and i am the proud mother of a 2yr old boy who also has SB, pregnancy was hell for me as i lost all independance, my partner at the time (im now a single parent) had to do everything for me, which i hated but i had a normal delivery with just gas n air, my son is my miracle as i was told i could never have kids xAnonymoushttps://www.blogger.com/profile/17255919830789648488noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-91887174350603828902015-11-25T22:24:13.275-05:002015-11-25T22:24:13.275-05:00Hi, anonymous! I don't know how long it has be...Hi, anonymous! I don't know how long it has been since you posted, but if you are in the U.S. please look to your local Rehabilitation Commission. They will help you achieve career independence, including helping you financially with college. I suggest starting at a community college because of low cost, proving your stripes there, and then getting into a 4 year college with hopefully a scholarship if not at least financial aid. :) Good luck. People with SB can do anything, I have two college degrees.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-71748945896112984282015-11-09T11:01:07.854-05:002015-11-09T11:01:07.854-05:00Hi Heather I'm 18 years old my name is Belen ...Hi Heather I'm 18 years old my name is Belen I am so happy to hear your a registered nurse I also want to be a nurse or at least in the medical field I'm not exactly sure where yet. I wanted to take a a nursing program in high school but they told me no because I couldn't squat down and other things. Hopefully I will also find a career that will fit me and I am so happy to hear that many of the women here are able to get pregnant and have healthy sex lives that was also my concern because I can walk but I don't have a lot of sensation and some parts of my body are num. Wich has kept me from wanting to date anybody or be open to dating. But I am so happy to see so many women with spinach bifida doing so well.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-74686910335308059082015-11-09T10:44:14.055-05:002015-11-09T10:44:14.055-05:00Hi I'm 18 years old and I also have spina bifi...Hi I'm 18 years old and I also have spina bifida and myelomeningocele, I am so happy to hear that there are other women out there that have the same disability as I do and have accomplished so much. I also want to become a nurse but because I don't have money to pay for college I wanted to get in a nurse program in high school but they told me no because I could squat down and other things. Now I'm no longer in high school I am getting my GED because I missed so much school the first two years that they wanted to put me back in sophomore year but I decided to get my GED instead but knowing that you Heather have becomes a registered nurse gives me hope I'll be able to as well. It also comfort me to know that all of you with spinach bifida have been able to get pregnant hopefully I will too. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-80336239132168986262015-08-05T00:24:22.441-04:002015-08-05T00:24:22.441-04:00Don't consume caffeineDon't consume caffeineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-53596523282287612942015-02-16T00:15:30.778-05:002015-02-16T00:15:30.778-05:00Hi I am Megan and I am 23 years old and I also hav...Hi I am Megan and I am 23 years old and I also have myelomeningocele. Reading your post has really brightened my outlook on this pregnancy. My first pregnancy ended in a miscarriage at 6weeks. I am now pregnant again (2 months later). I am praying this baby will stick and I will have a healthy baby! <br />Thank you for sharing your story! It has really put my mind at ease a little bit. Anonymoushttps://www.blogger.com/profile/16365497828546512169noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-1682294981915039582015-02-16T00:12:24.467-05:002015-02-16T00:12:24.467-05:00Hi my name is Megan and I am 23, also living with ...Hi my name is Megan and I am 23, also living with myelomeningocele. I was also blessed with onky having 1 surgery at birth and being able to walk even though the doctors told my parents i would never be able to. My first pregnancy ended in a miscarriage at 6 weeks. I am now pregnant again and hoping for a healthy baby. Reading your post has really made me stay positive and I am more confident that I can have the family that I have always wanted. Thank you for sharing your story! Anonymoushttps://www.blogger.com/profile/16365497828546512169noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-31645193766567461922015-01-12T08:15:43.496-05:002015-01-12T08:15:43.496-05:00Hi,
Hope you good my wife is 2 months pregnant wit...Hi,<br />Hope you good my wife is 2 months pregnant with Spina Bifida.<br />If you need any help or you can help us <br />Regarding pregnancy with spina bifida.<br />Yasir_msd@yahoo.com Yasir Rajahttps://www.blogger.com/profile/13194753375903193663noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-6811429589016159522014-06-07T11:18:24.318-04:002014-06-07T11:18:24.318-04:00I'm 30 years old woman with spina bifida tryin...I'm 30 years old woman with spina bifida trying to get pregnant will be hard for me to achieve it at this age and have a disabilityAnonymoushttps://www.blogger.com/profile/18422504402732817527noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-41494657318722842432014-06-07T11:13:09.159-04:002014-06-07T11:13:09.159-04:00Hi I'm a person with spina bifida I'm 30 y...Hi I'm a person with spina bifida I'm 30 years old me and my boyfriend want to have a kid. I hear that at this age is hard to get pregnant is that true what other options do I have in order to get pregnantAnonymoushttps://www.blogger.com/profile/18422504402732817527noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-78605182357353036742014-05-04T23:28:40.710-04:002014-05-04T23:28:40.710-04:00I am 29 years old i was born with spina bifida als...I am 29 years old i was born with spina bifida also. I am now married and pregnant with our first child.<br /><br /> I am absolutely terrified. I cant eat I cant sleep. I keep having nightmares that my baby will turn out like me. I have weird symptoms too like small fevers nightly. <br /><br />This leads to more fear for me. I wanted to speak to anyone that can give me some advice. Some help so as to at least be able to calm down :( as my doctors arent being much help..they dont know what its like in our situations...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-24659264336573859652014-02-25T16:50:05.301-05:002014-02-25T16:50:05.301-05:00I would like to speak to somebody who has spina bi...I would like to speak to somebody who has spina bifida who have had children, as i am 30 years old and have spina bifida and i dont know anybody else who has it, and have couple of questions about being pregnant with spina bifida, if somebody could help me out with this that would be great. my email is citychick95@hotmail.com KellyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-77790075142184664192013-10-31T03:22:01.932-04:002013-10-31T03:22:01.932-04:00I'm about to try and start a family in the nex...I'm about to try and start a family in the next few years and having spina bifida is stressful enough, but not having any firsthand accounts of a woman having it and carrying to term has been frustrating. I am so glad I found your blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-23186961005564020192013-09-13T03:17:47.757-04:002013-09-13T03:17:47.757-04:00This is fantastic!This is fantastic!Ingeborghttp://themeatgrinders.info/noreply@blogger.comtag:blogger.com,1999:blog-12404113.post-28994446334683939192013-07-10T08:01:46.579-04:002013-07-10T08:01:46.579-04:00Hi, I also have a Mitroffinoff and I'm 16weeks...Hi, I also have a Mitroffinoff and I'm 16weeks pregnant, everything so far is looking healthy but we won't fully know until my 20weeks scan, hope this helps you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-6372680810984142542013-05-30T13:20:55.766-04:002013-05-30T13:20:55.766-04:00Hello,
I am 29 years old and have Spina Bifida. ...Hello,<br /><br />I am 29 years old and have Spina Bifida. My husband and I just found out we are expecting our first baby and my first OBGYN appt is scheduled in about 2 weeks. I am ambulatory and don't use a wheelchair, however I have incontinence issues and regularly cath. I also am on the medication Detrol LA to help with overactive bladder. Because I am pregnant, I have been advised to discontinue my use of Detrol LA. Because of this, I am finding it extremely difficult to keep my bladder under control, causing frequent leaking throughout the day/night. Other than keeping on a regular schedule of cathing, can anyone that may have been in a similar situation offer any advice? Thanks in advance for any insight!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-87727222924484279432013-03-13T22:11:48.349-04:002013-03-13T22:11:48.349-04:00I am a 42 year with spina bifida. I gave birth 18 ...I am a 42 year with spina bifida. I gave birth 18 years ago to a beautiful son. He is in perfect physical health and will play basketball in college next year.<br /><br />Pregnancy was rough because of my small stature and chronic kidney issues. I suffered from preeclampsia and delivered my son at 35 weeks. <br /><br />I have discovered that ob/gyn doctors now know more about treating patients with my unique health issues than they did 18 years ago! If anyone is considering having children, I would highly recommend finding a great perinatologist (a physician that specializes in high risk pregnancies) to help you! Dananoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-71863889505067703222013-01-26T09:56:52.428-05:002013-01-26T09:56:52.428-05:00Can someone offer me any advice? I am a 26 year ol...Can someone offer me any advice? I am a 26 year old female with a lypomylomeningicle. I can walk, have full bladder and bowel control and have no problems in life. I got married last year and mybhusband and I are keen to start a family. We are awaiting an appointment from a geneticist to see what the risks are of me passing on spina bifida. Anyones comments or stories would be great, thank you. Lindsey Jonesnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-65611701604040501662012-12-16T23:11:27.487-05:002012-12-16T23:11:27.487-05:00im wondering the same thing as anonymous , is ther...im wondering the same thing as anonymous , is there any way youd be comfortable talking to those who arent comfortable asking you questions in a public forum via email?sbgalnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-73858748685668654602012-09-23T19:29:49.813-04:002012-09-23T19:29:49.813-04:00Hi, Im 21 and i have Sb As Well And i have been tr...Hi, Im 21 and i have Sb As Well And i have been trying to get pregnant for a while now, what are some suggestions on maybe how long it may take to get pregnant or jus advice in general about SbAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-56895906419264683342012-09-23T19:25:19.780-04:002012-09-23T19:25:19.780-04:00Hi, i Have Sb As Well, And have been trying to get...Hi, i Have Sb As Well, And have been trying to get pregnant now for a while, i thought it had something to do with Sb, But when i read this blessing you had i now know its not that and women with Sb CAN Concieve. What is some advice to help get pregnant ?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12404113.post-3363599975127649132011-11-21T20:25:43.000-05:002011-11-21T20:25:43.000-05:00I am not sure if anyone can help me or not. I am a...I am not sure if anyone can help me or not. I am a 35yr old female that was given up for adoption out of Madelia, Minnesota but the adoption agency was in Minneapolis. I found out that my birth mother had spina bifida and have always wanted to find her and whatever other information that I can find of her. I, myself do not have spina bifida however I do have back problems and the doctors are still trying to figure out if the back problems that I have is from my family health or my weight issue that I had faced most of my life. I had weight loss surgery back in Dec 2004 & now have a 4 year old son and I just wanted to know if he is going to experience back problems too or if he is lucky not too. I have so many questions and feel such a void in my heart because both of the adopted parents are not deceased and were never able to give me the answer that I was looking for or didn't feel the need to so if anyone out there can answer my questions or a least point me in the right direction, please contact me via email at luvloneytunes1976@gmail.com. I am hoping someone out there will be able to help me on this matter as I still search for my birth families. We have no one else left in my family nor my husbands family and it tears me up that my son doesn't have a grandparent, brother or sister or anyone else he can turn too in the event something happened to me or my husband. I was also told back in 1976 there was a waiver that was signed regarding the adoption but have not found out it that was true or not and also I have contacted the adoption agency where I was told that I was adopted through and still not able to get any information from there unless I have at least 10,000 dollars to pay them and doesn't even include the chance of me finding my birth parents. So again, I am asking if anyone out there can help me, I would greatly appreciate their help. Thank you for your time and have a nice day.Anonymousnoreply@blogger.com