Friday, April 22, 2005

Introduction/Mission Statement

Hi! Welcome to my blog. My name is Amy and I'm a 30 something year old mom of a healthy, active and adorable 2 year old daughter. I am happily married to a wonderfully supportive man. And, oh yeah, I have spina bifida.

Spina bifida is a birth defect that can come in many different degrees of severity, from hardly recognizable as a problem at all, to total paralyzation from the chest down. Spina Bifida is a defect where the spine is not fully formed at birth. My degree of severity is not too terrible as it is low on my back, but I do need to wear short leg braces and walk with the aid of a walking stick to help with mobility. I also have no feeling or movement of my legs from the knees down.

I met my husband at work several years ago. He is a healthy, handsome, "normal" man. We knew even before we were married that we wanted to have kids. But before we got pregnant there were many things to consider and deal with due to my disability.

This blog is here to talk about our journey to pregnancy, how I and the doctors handled my pregnancy, labor and delivery, and how I now cope as the mother of that active, HEALTHY 28-month-old love-of-my-life. She is my new passion in life and I want to do what I can to share my passion with others, hopefully inspiring other women with spina bifida, encourage them to go after their maternal dreams.

I welcome and encourage feedback from my readers. I'd love to engage in a dialog with you and help you on your own personal journeys. I, of course, don't even pretend to know it all, but if I can at least tell my story, then maybe at least one woman in a similar situation can see that, yes, she too can realize her parenthood dreams.

So watch for future entries. I'll update at least once a week. I'll be watching for your comments. Talk to you soon!

2 comments:

Anonymous said...

Hello, I am 28/f with spina bifida.
My husband and I have been trying to conceive for over 5 years now and are about to see a specialist regarding in-vetro/ IUI. Did you have alot of trouble conceiving?

Manda_Spina_Bifida_Girl said...

Hi Amanda here, I am 23 years old with an almost 2 yr old. I have been married for 3.5 years now. I look forward to reading all your blogs :)